By Stephanie Holland (AKA Josh's Mom)
Where I Started
Until recently, I had an aversion to Down syndrome research, mostly medical research. (My admission is on record here.) I've been keeping an open mind as I learn more and getting to know some of the researchers has helped change my perspective. There's so much that we don't know, especially when it comes to adults who have Down syndrome, and research, done well, can help answer some of the questions we have as parents.
In my recent update on that first article I wrote about getting to meet Dr. Harpold and my desire to learn more about the difference in life expectancy due to race. We also interviewed Drs. Bardhan and Parisi from NIH about DS-Connect so that our community could learn more about the work they're doing and how we as families can help.
In my recent update on that first article I wrote about getting to meet Dr. Harpold and my desire to learn more about the difference in life expectancy due to race. We also interviewed Drs. Bardhan and Parisi from NIH about DS-Connect so that our community could learn more about the work they're doing and how we as families can help.