President Brandy Snow tells us what mDs is and how IMDSA helps "Unite unique people in a unique world."
What is mosaic Down syndrome?
What kind of support does IMDSA provide?
Directly, we provide multiple environments in the form social media. This allows a very spread-out group of individuals a platform to connect in, thus shrinking this big world we live in. People that otherwise might not ever meet another individual with mDs have the opportunity to connect with, learn from, and get to know on some level other parents and self advocates that share many of the same experiences, celebrations, and struggles. We also provide printed information to new families that connect with us. This is information that they can use for their own personal use as well as share with the many professionals in theirs or their child’s life. Add to the above, our Family Connect satellite groups. Parents that are skilled and informed in the realm of mDs can volunteer to be a point of contact for families in their particular state. They will often get together to have cookouts or play dates or whatever suits the majority.
Together, we CAN do so much.