Did I really write a book?
I started our blog, The Ordinary Life of an Extraordinary Girl on August 26, 2009 with the following introduction, “Today I decided I wanted to chronicle the life of Alex, a 16 year old high school sophomore with Down syndrome. I am hoping to share the triumphs and challenges of raising this remarkable daughter. I choose today to start because it is her third day of school and the first day of football practice. I plan to finish this narrative at the end of July 2010, which coincides with the conclusion of the National Special Olympics in Lincoln, NE where Alex will be representing the state of Colorado in track and field”.
I immediately became hooked on writing and almost 550 posts and a book later I still love writing and blogging about Alex.
During the first year of blogging I began to realize I had a story to share. Alex is now 20 and a freshman in college. This did not happen by itself but was the culmination of years of advocacy and outright battles. But all along the way we honored Alex and her dreams for her future. We tried to create an environment where she could succeed and out of that took an unanticipated journey through the many systems that are in place. We traveled through the medical, educational, and state and local funding systems. We learned that was not enough, today’s systems are antiquated and do not meet the needs of this generation of children. As we followed in the footsteps of others who navigated and worked to improve the systems and we created our own footsteps between and around the systems and honored the work of so many past parents.
We share our journey in verbs.