For those of us on The Road, WDSD was... hectic to say the least. Hectic in a GOOD way! I didn't want the month to end without talking a little bit about the UN panel discussion on health.
In preparation for our 321 eConference session yesterday, "Finding Support via Social Media - Blogging and Internet Communities" - I did a lot of thinking about WHY I choose to share my story on various social media outlets.
It's a GREAT day!
Today has been so exciting and energizing! I've participated in the 321 eConference, and listened to Dr. Capone address the United Nations ! I've only begun to look through all the fabulous pictures and blog posts celebrating "designer genes" that have been shared online. Josh and I have danced to "I'm Happy" several times already today. And it's only just begun!
How COOL is that!
Josh helped pick out these pictures and was "too proud with me" about sharing them for WDSD. He kept saying - "Look at us!" with a big ol' grin on his face.
Indeed - look at us! The road may not have been easy, and hopefully there's a lot more to it! We'll keep working and sharing, not just for our family and friends, but for anyone who will listen. We love each other - we're happy - and we're grateful for the friends we've made along the way!
Happy World Down Syndrome Day! #WDSD14
tHIS KIND OF LOVE...
sTARTS AT FIRST SIGHT!
At this stage in our lives, most of us don't have room or time left to get excited about things like that. We're too busy focusing on the here and now - and we love our "kids" for the adults that they've grown in to.
Until recently - I passed over all the Facebook statuses, Tweets, and news articles that talked about research because I didn't think they had anything to do with me, my son, or our community.
This month we'll focus on telling stories about the adults who have Down syndrome that we love. We'll also address some of the issues that surround talking in public about our loved ones like:
Rion gives us a perfect example