I could use a play on words and explain the reason this last post in our A to Z Blogging Challenge is late by saying something about forgetting to do it.
The truth is that it's a difficult subject to write, or even think, about. For those of us with adult children who have Down syndrome, the worry about Alzheimer's disease is always present.
We can debate which one is “better,” but the truth is, when it comes to providing the best care for our loved ones, we need all the help we can get.
In Chinese philosophy, yin and yang (also, yin-yang or yin yang) describes how apparently opposite or contrary forces are actually complementary, interconnected, and interdependent in the natural world, and how they give rise to each other as they interrelate to one another.
As our children age out of school, we're in charge of seeking out the best supports for our families. These two sources are great places to find answers and keep up on what's new in disability services.
By Mardra Sikora
Today we are using a word found in the urban dictionary, a term derived from fiction, however the threat is still real.
I confess, I have scrapped and re-written this blog about 10 times. It’s not easy stuff to write, to share, or to face. Which may surprise you to hear as I have written and written and written about this. No, it never gets easier.
All I can hear right now is the line from the movie Princess Bride, “No. Is too much. I sum up.”
Let’s start with the headline of the most recent article on the website, Down Syndrome Prenatal Testing, is“NIPS: 3 babies with Down syndrome born & 2,432 more selective abortions.” I’ll cut to the conclusion: “And researchers say it is cost-effective precisely because it will lead to thousands more selective abortions of children with Down syndrome (and even thousands more abortions of children without Down syndrome).”
But that’s not all, only a few weeks ago Princeton Professor Peter Singer, stated in an interview that it is “’reasonable’ for the government or private insurance companies to deny treatment to infants with disabilities.” If you want to know more about the statement and Singer, without losing all hope for humanity, read the NCD reply here, instead.
Less than a year ago, another bioethicist publicly claimed it is “immoral” to have a child with Down syndrome.
By: Stephanie Holland
Today we’ll look at what kinds of projects are on the table right now, and where we might want to go next.
Our community has been celebrating a victory lately: the battle to get the federal ABLE bill passed took almost a decade. Parents and advocates from the Ds community fought in the trenches with people from many other disability groups. That kind of teamwork and dedication is necessary to accomplish the big tasks. The National Down Syndrome Society was among the leaders of that charge, and they have a well thought out plan for what comes next. During the 321 eConference, Ginny Sessions Siller, and Heather Sachs talked about the NDSS agenda for 2015. The NDSS National Policy Center is heavily involved in passing and tracking the progress of ABLE bills at the state level. Both the NDSS and the NDSC have a system where you can sign up for alerts when support is needed from the community.
It's Too Much!
By Mardra Sikora
In some ways, we in the Down syndrome community are our own village.
Life on "the road" of caregiving for adults who have Down syndrome.
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