Phoenix Recap – NDSC15
By: Stephanie Holland
This year the annual NDSC convention was held in sunny Phoenix, Arizona. The 100+ degree weather made things outside of the conference venue a bit sticky, but inside everything was “cool.” If I had to sum up my own experience this year I would use these three words: collaboration, friendship, and hope.
The Down syndrome and disability communities have been behind her, helping when and where we could, but for Patti and her family, this has been a very personal journey. There is good news however! This has been a week of breakthroughs worth celebrating! Today, I want to take a moment and update our community on some of the phenomenal progress that has been made, and celebrate Patti, the Saylor/Richmond families, and the thousands of people who have been touched in some way by #EthansLegacy.
321 eConference Update
By: Stephanie Holland
Sessions on Adult Issues
We are so excited for the 321 eConference this year! Starting on World Down Syndrome Day ( #WDSD15 ), there will be three days of learning, sharing, and advocacy !
We here on The Road are super excited because this conference has a diverse line-up of sessions geared toward parents and caregivers of adults who have Down syndrome! So far, we have 14 different sessions that focus on adult issues, including a keynote address from Patti Saylor on the progress that has been made by #JusticeForEthan.
This is just the beginning of a new source of information that will address our needs through virtual education with 321eLearning. If you have ideas for sessions you would like to see - even after the conference - feel free to email me!
Originally posted 2/25 during the Kickstarter campaign to fund Ethan's Law.
Hello blog readers, my name is Edward Rhodes and I am the director of the documentary Ethan's Law.
Our intention is to depict accurately the events leading up to the death of Ethan Saylor, the actions taken by Governor O’Malley in response, and the push for legislation providing Maryland Police with training on how to resolve conflicts with people who have intellectual and/or developmental disabilities.
So far a committee has been formed and tasked with the job to propose such legislation: the Committee for the inclusion of individuals with intellectual and developmental disabilities. This committee chaired by Timothy Shriver, President of the Special Olympics, consists of law enforcement officials, lobbyist, health care officials, self-advocates and politicians.
From the very beginning. I knew what an important story this was to tell.
Life on "the road" of caregiving for adults who have Down syndrome.
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Mardra Sikora (Facebook)