One great example of how the community comes together for the greater good is the collaboration that has happened to create the Down syndrome registry. The funding comes from NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), but ongoing input comes from parents, families, and representatives from every corner of the Ds world.
C is also for Capone -
Dr. George T Capone that is
Near the end of her talk, she played the video that can be found on the NIH website. I was so impressed by David Egan, a self-advocate who talks about the importance of research.