Written by: Stephanie Holland Why do we need another group? The amount of support available for new parents today compared to those of children born 50+ years ago is impressive. When you add in the number of groups available online it’s easy to come to the conclusion that one more group is simply redundant. So why did I start The Road We’ve Shared in January of this year? As we talk about the resources offered by the existing national groups this month, I’d like to take a moment and talk about how The Road came to be and what we see as our mission.
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Originally posted by Stephanie Holland 3/1/14 This month we'll focus on telling stories about the adults who have Down syndrome that we love. We'll also address some of the issues that surround talking in public about our loved ones like:
Rion gives us a perfect example Written by Stephanie Holland (Walkersvillemom)
We may have different visions of how that plays out, but on this basic premise we agree: when the public at large makes unilateral decisions based on theory, there is considerable potential to limit individual choices that should be made based on need and experience.
Originally posted 1/16/14 by Stephanie Holland (Walkersvillemom) Join the King Family of Freedom Farms as they battle the elements - and each other - to keep the family business going. This hardworking family will keep you laughing as they provide the Pittsburgh region with the very freshest produce possible. Originally posted 1/7/14 by Walkersvillemom Christian Royal has a gift. His pottery is beautiful and functional. It has the hallmark of true artistry, a unique look that expresses what he wants to say about the world around him, his Charleston, SC home. His passion and attention to detail is obvious in his work which is currently being sold in seven stores near his home and will soon be available on-line. Christian’s story is one of an artist who is experiencing recognition, respect, and the beginning of a profitable career as a craftsman. It’s a story that many artists, young and old, would envy: the ability to recognize your gift and use it to create art that people enjoy and want to buy, collect, and share. Like everyone else, there is more to Christian’s story than what he does for a living. There’s the story of his family, his geographic location, his hobbies, friends, and life experiences. There’s also the fact that he happens to have Down syndrome. Summer is starting and so are the vacations. Do you have a favorite place to go with your loved ones? Are there places that are better suited for adults who have Down syndrome that you can recommend to other families? We'd love to hear your stories and share your favorite vacation photos!
Originally posted 5/14/14 - Updated 6/13/14 Some of you may have noticed that we've been fundraising lately and wondered why. Since we're a very new group, I thought I should take a moment and explain exactly what's going on to those of you who have been with us so far, and any new people that might see our pleas for help. What We're Doing*This is the original post introducing The Road in January 2014. I use this drawing as my "profile picture" on most things that I do under the "Walkersvillemom" name. It symbolizes the sentiment "I Love Someone Who Has Down Syndrome." There are LOTS of us out there who do! So what makes this online community different than the ones that
are already out there - lets face it - there are many. This one is geared toward and focuses on the needs of parents/caregivers who are dealing with adult issues. There are fewer choices for our specific group, but we need them just as much. Our needs are different. I have some ideas about what I'd like to see in an online community - but I'm looking for input. Please feel free to share ideas about what features you think we should have and what topics you'd like to learn more about / discuss. |
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