Since this month's topic is legal issues, I wanted to start looking at what I've heard experts say is the most important "first step" in planning for the future - the Letter of Intent (LOI).
From what I've read (I'm no lawyer) the LOI is NOT a legally binding document, but it is a way for parents to let their wishes be known. It's also a tool to help other caregivers understand your loved one's habits and routines.
It's important to create - and update.
It's a Daunting Task
Starting Off Easy
"What would they need to know to maneuver 48 hours of caregiving?"
The Next Step
This quote comes from a study that was done online. It found that "many siblings yearn for greater involvement in the lives of their siblings with disabilities, but need more information, networking opportunities and supports."