Until recently - I passed over all the Facebook statuses, Tweets, and news articles that talked about research because I didn't think they had anything to do with me, my son, or our community.
Originally posted 3/6/14. Updated 7/16/14 by Stephanie Holland At this stage in our lives, most of us don't have room or time left to get excited about things like that. We're too busy focusing on the here and now - and we love our "kids" for the adults that they've grown in to.
Until recently - I passed over all the Facebook statuses, Tweets, and news articles that talked about research because I didn't think they had anything to do with me, my son, or our community.
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Written by: Stephanie Holland Why do we need another group? The amount of support available for new parents today compared to those of children born 50+ years ago is impressive. When you add in the number of groups available online it’s easy to come to the conclusion that one more group is simply redundant. So why did I start The Road We’ve Shared in January of this year? As we talk about the resources offered by the existing national groups this month, I’d like to take a moment and talk about how The Road came to be and what we see as our mission.
Are you attending the NDSC Conference in just a few weeks? Have you browsed the schedule of sessions and list of presenters? I am THRILLED to report that the adult crowd is well represented this year!
Here's a list of the titles and presenters that I found particularly interesting based on the ideas and topics we've been discussing here on The Road. There's also a few friends who will be in the exhibit hall! If you are, or know any of these fine folks please drop us a line! We're hoping to set up a series of short radio interviews with as many as we can before the big weekend. It would be a great opportunity to give a preview of your presentation to a target audience and let us know why we should be excited to hear more in person. Originally posted 5/14/14 - Updated 6/13/14 Some of you may have noticed that we've been fundraising lately and wondered why. Since we're a very new group, I thought I should take a moment and explain exactly what's going on to those of you who have been with us so far, and any new people that might see our pleas for help. What We're Doing*This is the original post introducing The Road in January 2014. I use this drawing as my "profile picture" on most things that I do under the "Walkersvillemom" name. It symbolizes the sentiment "I Love Someone Who Has Down Syndrome." There are LOTS of us out there who do! So what makes this online community different than the ones that
are already out there - lets face it - there are many. This one is geared toward and focuses on the needs of parents/caregivers who are dealing with adult issues. There are fewer choices for our specific group, but we need them just as much. Our needs are different. I have some ideas about what I'd like to see in an online community - but I'm looking for input. Please feel free to share ideas about what features you think we should have and what topics you'd like to learn more about / discuss. |
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