Health and wellbeing – Access and equality for all on the occasion of World Down Syndrome Day
If you missed the presentation, you can watch it via download. It's four hours of great speakers talking about - as you would expect, health care and access around the world.
I was personally excited to see that one of Josh's doctors from when we lived in Maryland was speaking. Dr. George Capone from the Kennedy Kreiger Institute Down syndrome Clinic in Baltimore, MD is one of my personal heroes.
He talked about guidelines that exist for newborns, and for children. These guidelines are published by the American Academy of Pediatrics. Dr. Capone mentioned that they were developed in 1994 and revised in 2001 and 2011. They apparently try to update them regularly.
The only thing is - they stop at age 21.
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“For adults, we don’t have such guidelines in place. This is an area where we need to put more thought and planning into this – after all, most people living with Down syndrome are adults.” - Dr. George Capone
Add to this the fact that adults with Down syndrome age faster than "typical" adults and the issue becomes even more complicated.
“age related issues are accelerated in this population” “when aging actually begins is a good question”… - Dr. George Capone
Also - I've started worrying about how we'll address the medical issues of aging without having access to any specialists where we are. I never really took the time to think about "aging" as another phase in our lives where we would need to seek out specialists......
I'm hoping that this means Dr. Capone and his fabulous clinic will extend their services to older adults!